Other things are still a little slow-going... she seems "stalled" physically. I know she may just be growing in other ways, so I"m not overly stressed about it. It's simply an observation I've made as of late. She also has fewer times per day where she is her smiley and happy self "on demand." Is she still content? Yes. Do I feel it's less often per day? Yes. Partly, I *think* it's because she is sleeping more (whether it be growth spurt, post-surgery, or a combination of both), but her awake times also seem more "contemplative" these days... as compared to how immediately happy as she used to be. So we will wait and see if these things improve at all, or if this is just her new "normal."
Our state EI program Meagan has been "in" since birth is finally making good on their promises for therapy. After months of micommunications, unanswered emails, frustrating conversations, and still no change in therapies for Meagan , I decided to email them again and this time copy the state director on the email. I received a callback within a few days. (Amazing how that works). The local director was not too happy I went above her head, but, it did get things done didn't it! In the end, my focus and advocacy is for Meagan and the services she needs.....not for someone's feelings because their program isn't functioning efficiently. If it means someone gets uncomfortable because I go above their head to make them accountable for their actions, then so be it. Needless to say, now Meagan has an OT coming to the house to work on fine motor skills and feeding. (She is starting to work on Meagan with eating off a spoon/solids as she still isn't doing so with me at home). Meagan will also get a PT through the EI program who will come to the house. We are going to keep her private PT at Children's once a week because she has done such an excellent job, and we have a good relationship with her. We are starting speech therapy at Children's as well.
Meagan sure is one busy little girl! 3-4 therapies per week now, post op appointments, and running everywhere with Mommy for carpools, errands, and activities. 2 weeks post-op, and life is pretty good. We are very excited to celebrate her very special birthday this coming Sunday! How could I not be when I get to look down at this snuggling me every night!