Yesterday (day 3) ended up ok but Meagan did vomit again twice. She was not a happy camper throughout the evening and had a LOT of trouble sleeping last night. Granted, we had no vomiting during the night, so I will take that. Dr. R came in early and turned her up her pressure again. Meagan was ok for a little bit but then became extremely irritable. She was so out of sorts, we went ahead and had the nurse give her some pain meds. Within several minutes, she fell asleep (hopefully pain free) and slept for hours.
Once she woke up it was nearly after lunch time. She still had a full soft spot and you could tell her head was bothering her, but she wasn't nearly as fussy or as bad as before. The big girls are enjoying swim camp that Nanny and Pop Pop gave them to help them be distracted this week and also have fun, so today while the girls were at camp, Brian's mom (who is caring for them after camp this week) came to see Megs. She brought a cute book and Minnie Mouse for her (Meagan's favorite). Brian's mom read to Meagan for a while and then she was also able to call Grandpa on the phone and let Meagan hear his voice for a little bit.
We had a few other visitors today as well. Our other dance friends are at camp but one of their moms came to see Megs. She brought some very cute colored elephants to hang from Meagan's IV pole so she had other things to look at, and a few other comfy gifts. Two other hydro families we know also visited. Ann and her son Cass happened to be in town for appointments so they stopped up to say hello and brought some cute gifts and snacks. Also, another hydro family we know Laura and Troy stopped in with their son Owen. They brought Meagan some cute gifts as well including a book and homemade food for us. Meagan is certainly very lucky with all her friends - and a bit spoiled too. But, that's ok.
Meagan started to become irritable again this afternoon. She was extremely restless and had glassy eyes while she winced and would hold her head. This continued on for a while. Every so many minutes, she would have moments of calm trying to sleep ... but then her body would jolt and she would cry again and scream. After about two hours, she ended up vomiting again and then seemed to calm. Once she was cleaned up, she did finally relax and doze off to sleep.
The game plan for tomorrow morning is an early CT scan to check on Meagan's ventricle size. We want them to have ballooned up larger. If he is happy where they are, he will leave her at that setting over the weekend to stretch out her ventricles. If they have grown but he still wants them to balloon more, he will turn her up again and then leave her at that new higher setting for the weekend to expand the vents. If they are still slit, it's a whole other ballgame so I'm not even going to address that right now. We are hoping to see this has worked to expand her pressures a little and that we can move forward from there for a surgery plan to put back in a shunt system for her that will work better for her. So we shall see what the morning brings...
**** I realize in the first post I never really detailed what the EVD was. I provided an informative link, but, here are pictures of Meagan's EVD.