The good thing about her being up all night is that she slept a good part of the next day. This was a blessing in disguise because Megs had to be NPO (no food/formula) after midnight, so the longer she slept the next day was actually better. Then she wouldn't be up and hungry all day. Dr. R spoke to me briefly about the plan for Meagan's surgery. He would put in a high pressure valve to keep her pressure level consistent with the level we had on her EVD but in succession with that he would put a programmable valve. He mentioned her possibly needing a third valve but said we would play that one by ear based on how she did. We didn't chat long - he had some emergencies come in that had bumped our surgery back a few hours. As frustrating as it is to wait, emergencies are never fun and of course our hearts went out to those families. We hope all is ok with their children.
Brian made his way over from work to wait with me. We talked and sat and enjoyed time with Meagan. She even got in a quick nap with daddy. Finally around 4pm we got the call that Dr. R was ready for Megs. She got her Versed from the nurse and we made our way to the pre op room at the OR. Meagan was feeling relaxed by then from the Versed and noticed the large screen in the pre op room. She looked at it, and said in the funniest voice ever, "Mama, I wanna watch Frozen." It was so cute - I wish I had caught it on camera! Our nurse that day got such a kick out of that and promised Megs she could watch Frozen after surgery.
While she was in surgery, Brian and I decided to walk around. We went to the gift shop and found the perfect balloon for Megs - one with Anna and Elsa from Frozen. We walked it back to the room and then decided to go sit outside and eat ice cream while we waited. We needed to pass the time somehow and that sounded like a great idea. We made our way to the cafeteria, got our ice cream, and sat outside. We had some good conversation, and also some nervous laughter. Meagan has had much longer and more invasive surgeries in the past, but it's funny how nervous I felt for this one. Probably the idea that this was all new along with the fact that the results are such a toss up got to me. I'm normally pretty stoic but I was definitely feeling butterflies in my stomach the whole time Meagan was in surgery. Brian and I captured a moment on camera (as we rarely have pictures together lately!) It wasn't until I looked at the picture after the fact that I noticed the real exhaustion and worry in both of our faces. I guess we don't hide it that well all the time.