- This is how our morning started out. I woke up to Meagan screaming and saying "ow" over and over again. I have never been so glad to know that today was surgery day and the start of (hopefully) and new (and better) plan.
- Meagan was fairly upset all morning. She typically gets upset at the hospital but today she had started off that way and was obviously uncomfortable. What a day to have a pain episode - "bring on surgery" was all I could think as we made our way to the hospital. We checked in. All registration went smoothly and she was whisked back quite quickly to the nurses to check her in.
- About an hour later Meagan got up to the room. The external drain didn't look too bad - the tricky part is going to be keeping her from grabbing or pulling at it accidentally. We have arm braces just in case they are necessary but for now we are just watching her closely. She is very sleepy/lethargic and goes between that and suddenly holding her eyes and being really fussy. We will see how it goes through the night.
Stitched nicely so it's not bothering her too much
- Dr. R plans to continue with the increased pressure and recheck her ventricles as we go along. He expects it to take one to two weeks. He said, rightfully so, we are "in a marathon right now, not a sprint." Boy is he right. Lots of information and lots of outcomes to ponder. Hoping the ventricles open up nicely and we see my sweet girl starting to get some long term comfort.
Snuggling Bear. Bear makes it all better.