Face of hope

Face of hope
Courtesy: TIffany Kay Photography

Friday, January 27, 2012

Beautiful

Beautiful is one of those words that we hear all the time... kind of like "love."  It is often used in many contexts, thrown around like the wind and overused... and yes... meaningless at times because of these things.  But it truly is a word that fascinates me.  What is "beautiful?" Despite all its overuse, I think I found its true meaning when I looked at my sweet girl in my arms tonight.

Meagan had a pretty sleepy day.  She was awake for a few minutes here and there, and in these times was alert.  I sat her up on my knees and just looked at her.  I started looking at her hair - it is so thick.  It has a rich dark brown color and on the ends, she is even starting to get these crazy curls.  Then I looked at her eyebrows.. they are so inquisitive.  They raise up when she looks at me, and get stern when she doesn't feel well.  Her eyes of course are just like her sisters'... so big.  They seem to take in all they can from her surroundings.  Meagan has the tiniest cutest little nose... and her lips and mouth are also tiny and almost look 'painted' on her face.  Overall, Meagan has very delicate features.  I loved just sitting there looking at her face and all the stories every little part of that face was telling me.

People tell me all the time "Meagan is so beautiful."  Especially nurses or doctors that we have had to work with over prolonged periods of time.  Her Neurosurgeon said the other day "Oh Meagan you are so beautiful," following which he picked her up and gave her kisses on her head and snuggled her.  Family and friends will drop me a note and tell me "Oh Meagan is so beautiful in her latest picture."    I must say I have agreed with all of these people... a lot of that is because I'm her mom - of course I think she's beautiful, as I also think my other girls are beautiful...and as any mom would about her child. Today, out of curiosity, I decided to look up the 'real' definition of beautiful.

 According to the dictionary beautiful means: 1. Pleasing the sense or mind aesthetically and 2. of a very high standard; excellent.   I have definitely been thinking more of the first definition.  Her little features, her dark hair, her delicate being - it was aesthetically pleasing to look at my sweet baby and all the things that made her beautiful.  But the more and more I sat with her today, I realized I was ignoring half of the definition of beautiful that I read tonight.  Sure, I may think Meagan is beautiful on the outside, but I think I was missing the point.

I then started to think about everything she's been through in her mere 4 months on Earth: a risky birth, brain surgery at 3 days old, 4 shunt adjustments, seizures, 3 hospitalizations, 6 ER visits, Bronchilitis, shunt swelling, vomiting, pressure, pain and countless needle sticks. I started to think about how much that was for such a tiny body, such a tiny person....then I looked down at Meagan laying on my knees.  Her physical beauty was apparent, but then it was clear to me she embodied the whole definition of beautiful. 

Meagan is the least judgemental person I know. She however, has probably been the most judged by others. She has been doubted the most.  She has been dismissed the most.  And yet here she is.  Making her own path...working through her challenges...and surprising me everyday. The doctors who judged her life before she even started living it didnt' know what they were dealing with.  Meagan truly is the second half of beautiful:  "of a higher standard; excellent."  She is of a higher standard than those who chose to dismiss her existence...and she is doing excellent despite expert opinions, medical degrees, or doubting bystandards who said otherwise.

So as I sit here tonight, do I notice Meagan's dark thick hair? Do I study her eyes and her long lashes? Do I ponder her delicate nose and lips? Of course.  But I smile at her excellenece to push forward.  I am in awe of her higher standard of life... to take setback after setback and smile her way through them all.  And I am certainly one proud Mama of a truly beautiful little baby girl.  Next time I am curious about the full meaning of beautiful, I know I don't have to look it up, or search on Google, or pull out my dictionary.  I can just look at Meagan.


9 comments:

  1. She truly is a beauty in every sense of the word.
    Meagan allows us see a miracle God created. She has called us to prayer. She is teaching us perserverence and downright spunk. Yes, she is beautiful.
    Karen

    ReplyDelete
  2. Hey my name is Julie & my son also has hydro I enjoy reading your blog, Meagan is very beautiful I wish her nothing but the best.

    ReplyDelete
    Replies
    1. Hi Julie! HOw old is your son? WHere do you all live? Did you know about it in utero? I hope your son is doing well!! Thanks for stopping by. :)

      Delete
  3. Hey, my son is going to turn 4 months on the 4th, we live in new Jersey and yes we found out at 36 weeks, Dennis had a brain hammorage so that's what caused the hydro, hes been threw a bumpy road, shunted infection and 4 revisions but hes been home stable and doing good, if you want to read his story your welcome to follow our blog*

    ReplyDelete
    Replies
    1. THanks!!! I checked it out..he is SO cute .... glad to hear he is doing well now... I'm very thankful that we've only had minimal shunt problems... could do without the seizures though. HOw big was his head at birth? THat's really good, though, that it didn't happen till later in the pregnancy. He and my daughter are almost the same age! :)

      Delete
  4. Thanks your daughter is so cute too. His head was 42 cm how about Meagan? Dennis hasnt had seizures only when he had his shunted infection, hes been taking phenobar. How is your daugher doing with head control? I really hope the seizures stop for your little one.

    ReplyDelete
    Replies
    1. Meagan was 48cm at birth.. she's gone down to 43cm and is now hovering around 44.5cm... her shunt has needed some adjustments, so of course that influences it.

      Meagan has no head control yet. If I pick her up, it falls straight back... if I hold her upright, her back is like a wet noodle and her head falls/sinks down. This is the main thing we're trying to work on in therapy right now.

      Delete
  5. His hc was 42cm at birth and it went down to 38 cm after shunt placement then after all his malfunctions it went up to 45cm and now its back to 42cm

    ReplyDelete
  6. Hi megan


    My name is Jenna and I came across your site. You are an amazing, precious gift and special earthly angel. You are full of courageous, strength, determination, and fight. You are a brave warrior, smilen champ and an inspiration. You are a princess hero, beautiful trooper, and a tough cookie. You are full of life, spunk, joy, smiles, and sunshine. You have taught everyone about life, and the gift of life. You will be in my thoughts and prayers. http://www.caringbridge.org/visit/champ291 I love it when people sign my guestbook.

    ReplyDelete