First, Meagan's stats:
Weight: 14lbs 10oz.
Height: 29 inches
She is obviously still very underweight for her age, but, her Pediatrician is very good about it. Dr. B said it is quite apparent Meagan isn't 'starving.' She looks healthy and has an appetite. She just had a rough start and some struggles getting going. Dr. B said she is still concerned because Meagan gained a few months ago, then lost over a pound, then gained again, then lost....with no changes in her eating habits/patterns. She doesn't like the unusual fluctuations with her already so behind in weight gain. However, she said she likes to stay positive, and thinks that giving Meagan another month to gauge her weight gain is perfectly acceptable. She wants us to log what Meagan eats, and also call back in a month to give her the new weight. If we are still working our way up the scale, we are good to keep watching. If Meagan has another random dip, we may be revisiting the GI doctor to discuss more "tube talk."
Height is fine. Her head circumference, ironically, is in the 2nd percentile. (probably due to her severe synostosis). She got her vaccines up to date and did really well at the appointment. Except for our weight check in 4 weeks, we don't have to go back now until 18 months old. Crazy how time is flying for my big girl! She is growing into a little toddler!
We also had her follow up from her December Neurosurgery appointment today. To recap the situation, she had a large crater sink in her head literally overnight and became very fussy. She wasn't tolerating sitting up anymore for longer than 1-4 minutes when she had been able to work on sitting for an hour. She wasn't sleeping well in any position except flat and had also slowed down in a few other areas. Dr. R turned up her pressure two notches on her shunt valve in hopes this would solve the problem at least for now. We have seen her head change drastically in the last four weeks. It has really puffed out and she seems a lot more comfortable.
1. Meagan's vents still look ok. It is now just a monitoring situation and hopefully will continue to be stable for a while.
2. Meagan's shunt looks good - it doesn't look to be pressed on, out of place, etc..etc.. so we are crossing our fingers our luck with her shunt will continue.
3. Meagan's plates from surgery are still in tact and in place. The fluid has pushed out her head nicely, and everything from her cranio surgery in September seems stable.
4. Two of Meagan's sutures have slightly overlapped again and fused - the very top and the back. But, Dr. R is not concerned at this time with intervention. He said since the front of her head is still nice and open, brain growth should still not be restricted. Dr. R said to go in and do a cranio surgery for those small fusions would be ill-advised at this time considering the risk of the surgery and the fact that as of now, there seems to be no Neurological consequences for leaving it alone. He said if I really pushed him and wanted it done, he would, but it's not advised for cosmetic reasons in Meagan's case.
No complaints here on Dr. R's recommondations! I'm very happy with not pushing him for surgery! I am very glad we have a Neurosurgeon who is thorough, and only goes to the OR when absolutely necessary to Meagan's development or brain health. I am happy Dr. R is not "surgery-happy" as some surgeons can be, and that he always sees it as a last resort. He truly has Meagan's best interest and uninterrupted development at the forefront of his focus. He said he will watch these areas closely, and if it ever becomes a true issue, we will go from there.