After today's session, she informed us that we would have a few weeks where she couldn't come to work with Meagan because she would be going on a trip. I remember her mentioning before Christmas about a trip to Africa. I asked today if it was recreational. She told me that she was actually going over for two weeks to work with nurses and programs in Africa where special needs children are cared for. She goes and sees many patients in the two week span to hopefully educate nurses and parents on how to better help their special needs children progress and reach goals, goals otherwise thought impossible.
I was really taken aback by the conversation with Meagan's PT. Her story brought to mind a charity we came across after Meagan's diagnosis called CURE. For many children like Meagan in other parts of the world, there is no hope. While we had to struggle with a doctor suggesting termination here, we at least had our own strength, education, and support system to bring Meagan into this world, and be her best advocate. In other parts of the world, there simply isn't that education or support, and many children like Meagan are simply discarded. One illustration that really opened my eyes to the whole situation was a video I found from CURE, describing how many local people in the area where CURE works deal with and view children with Hydrocephalus. I have posted a link to the video below - and a fair warning, it is not for children, and not for the faint of heart. It is the truth, but a brutal truth that has made a permanent imprint on my mind and heart.