First was her Neurology follow up. This was a planned visit. We saw the Nurse Practitioner this time (whom we love!). She was so sweet - went over all Meagan's history again, her progress, her problems, her seizures, her medication... etc..etc.. All in all, they were happy with her progress and that she seemed still "herself" and to not have any gross regressions as of yet. I did ask her about Meagan's clenched and twisted hands. She did a physical exam and said that Meagan still had low tone, so there was no sudden change in tone for her causing it. The CNP said most likely it is due to neurological overflow. In other words, Meagan is trying so hard to work on new skills, that when she is finally at rest (relaxing, sleeping or eating), her hands are over compensating by curling up or twisting because she's had "enough" input. It made complete sense to me, and, I was glad to hear she thinks it's an overload issue rather than a complete change in Meagan's tone.
Today was her Neurosurgery appointment. This one wasn't planned. As we know, Meagan's head has been all different shapes and sizes over the last months, especially in the last several months since her cranial surgery. I never worry at gradual changes... it's just her skull and the plates shifting, forming, and moving around as her head grows, fluid moves, and her skull bones settle in to place. But she has remained fairly "full" in the last month and a half. Finally she settled into a skull structure that seemed to stabilize and we started to see her head fill out in its usual empty spaces. Fast forward to Sunday night. Meagan went to bed as usual. When I got her out of bed the next day, her head was like this: