For me, it's not that hard to do. My everyday life does pretty well at keeping me busy. Between 5 kids, Meagan's needs, teaching music lessons, tending to an over-zealous (yet aging) senior Labrador, and having a husband who is working hard to support us (meaning most housework and clothes and toys that need cleaning falls on my shoulders...) it is all certainly plenty to pass my hours on a daily basis. On top of the "usual" (which is my short term for the previous list of daily duties), I also have been working with Meagan tirelessly each day on her PT every spare second we get. I realized a good update on what she is doing lately in therapies would be a positive thing to write about...(I also realized I hadn't updated that aspect of her development in quite a while)... so here we go. Bear with me.. it's a bit long. But if you read through to the end I guarantee you will be smiling. :)
Because of Meagan's new head control, I have been able to try and get her to sit supported with things other than myself. She did well for a while working with me (and her PT) but she has learned the practice of arching back - and forcefully. Of course we don't let her slam onto the floor because of her head and her shunt.....sometimes I wonder if she knows this because each time she slams backwards and we catch her, she usually looks to the side as if saying "What? What happened? I didn't do anything...." or even better she will look right at us and clap as if saying "Yea, this is what I wanted ...I'm the boss!"....
We have implemented a few new supported sitting positions for her so she isn't trying to flail herself backwards into a person. One of these is to work with her on a chair or couch so we can prop pillows around her and let her do some work... not having a person right behind her so she won't arch. She seems to like this a little bit, and it's even allowed me to sneak in some time with her arms. She HATES putting weight through her arms. (And I use hate in the full sense of the word.) So being on the chair allows me to prop her at an angle with pillows, "forcing" her to use an arm to lean on and therefore put a little weight through it.
This progress is very hopeful and exciting, but I try to enjoy the moment of what she is accomplishing. This isn't to dampen her improvements, but to just keep things in perspective and truly appreciate what she is doing at that time. I often get questions (and completely well meaning questions) from people about these new things... "Does this mean she will sit up soon on her own? .... does this mean she will be crawling this year?...." The answers are still "I don't know." The truth of the matter is, Meagan will continue to do what Meagan does, on her own time. We are thrilled about her recent strides in strength and stamina, and just try to take a day at a time.
I can't help but smile every time I look at Meagan. She has really brightened my perspective, especially this weekend. I love how she has brought us even closer together as a family. Each time she takes a baby step forward, it teaches us patience, gratitude, and more importantly teaches my girls how to work as a team. We are excited to see what the coming months hold for her. Most of all, though, we are continually happy she is here with us. We are thankful she continues to teach us life's lessons we sometimes let slip by...... perseverance...hope...and most of all unconditional love. And that's something we can all smile about.