This should have been no problem, as Meagan is already a patient at the GI practice. We have seen them since she was in the NICU through this last year before we started feeding therapy. However this time, we wanted to see a different doctor. Same practice, but, different doctor. While Dr. P was very nice, we felt medically, he was not a good match for us at this time. In the past he has sent us home with appetite stimulants and recommendations for high calorie formula. While these were reasonable steps to try and increase Meagan's calorie intake he never scheduled a follow up appointment. No weight checks. No date set when we would re-evaluate Meagan's condition. When asked, he said it wasn't necessary...which totally confused me. Here he had a brain kid who was losing and plateauing on weight gain, who liked food but wasn't able to take in the volume she needed, and who after 8 months of feeding therapy saw no great increase in her eating or weight....yet a follow up wasn't necessary? It just didn't sit right with me. I needed a more pro-active doctor. Someone who may have started with the same plan of the stimulants and therapy, but was more willing to sit down and make a long term nutrition plan for Meagan so we had goals and knew what to expect this year. When I called to make the appointment, I got a bit of a surprise....switching doctors was going to be quite the challenge.
In the past, we have switched doctors in almost every practice Meagan sees - from her Pediatric practice to Neurology...it is never an issue to schedule appointments with different physicians or even nurse practitioners based on who has openings in their schedules, or with whom we feel most comfortable dealing with Meagan. Not so at the GI practice. In order to see another doctor (one who has come highly recommended to us by our Pediatrician, two other Hydro families, and another family we know who has a non-Hydro child with GI issues), it has proven quite the process. We had to fill out an application and then an over the phone form with an operator at the practice. They then send the form and application on to the Operations Manager at the GI practice. They get 10 business days to "review" our reasons for switching doctors. If approved, the form then travels back to our original doctor at the practice who gets 10 more business days to officially sign off Meagan to the new doctor... or he could not sign, meaning we are stuck back at square one. This could also happen if the Operations Manager does not approve of us seeing a different doctor. Sounds crazy right? Well, it is in my opinion. There are no insurance or schedule discrepancies... therefore, I should be able to have my daughter seen by the doctor of my choice. I could not believe the hoops we had to jump through to see a different doctor...in the same practice....especially when she is already a patient at the practice!
It has been 10 business days and of course, there has been no return phone call. So being the squeaky wheel I can be when necessary, I called them to check on the status of our "application." After 26 minutes on hold, the receptionist finally took my information and told me I needed to be put through to the Operations Manager. "Great!" I thought. Just the person I want to talk to .... after several more minutes, she picked up. I once again gave the information and birth date to the Operations Manager. The response was "Hmmmm..hold on one moment...." and the next thing I heard was her voicemail! I could not believe I'd spent 38 minutes on hold to be shoved off to her voicemail. I left her a detailed message and am still awaiting a callback. In the meantime, Dr. B (Pediatrician) has a few names for us at Emory to call in case we never get through to the new doctor at our current GI practice. It has certainly been an education the past few weeks merely trying to see a different practitioner! So we will see what happens...at least we have Emory as a "plan B" in case we never get our "application" approved.
Meagan still enjoys lounging in her nap nanny. She doesn't sleep every night in it anymore, as I mentioned before. One of the reasons for this is something that happened a few nights ago. We were watching TV and folding laundry while Meagan laid in her nap nanny. She was playing with a ball and it dropped out of the side. Normally she would fuss or reach over to try to see where it went. We would typically get it for her when she got upset and she would go back to playing. This time, it was different. There are really no words to describe what happened but when I saw what she was starting to do, I grabbed my phone (ie: my camera...) and snapped photos. Meagan was able to pull herself up at an angle (like a sit up) and reach over the side and search for her ball. When she found it, she laid back down and continued to play. Here is what I saw that night:
This was really the end of my blog notes for this entry...but tonight she has started to do something we have been helping her with for a good 6-8 months. Meagan could never hold two items at one time. When one hand would grab a toy, the other would let go of the other toy she was holding. It was like her brain could only tell one hand at a time to hold an item. Tonight when she was playing with her blocks I heard a noise...bang...bang...bang... My 3 year old was sitting with Meagan so I didn't think much of it. I continued helping my oldest with her religion project and still I heard.. bang...bang...bang. Then I realized the noise did not sound consistent. It did not sound like my 3 year old... much to my surprise I looked down and Meagan was laying there, holding two blocks out of her new cube toy, and hitting them together! I took a little video of her. I could tell she was working incredibly hard. She normally reacts to me immediately in videos with smiles, funny faces and laughter (as you all have witnessed), but this time I think she was concentrating SO hard, that she couldn't even manage her usual laughs! Meagan seemed to really enjoy her new skill.....and I'm not exaggerating. I'm pretty sure she laid there and banged blocks together for a good 20 minutes. My poor oldest daughter, Reilly, continued working on her project ....with loud banging in the background from her little sister's blocks. Some may say distraction, but, I say Meagan is just helping Reilly build concentration. :)