Tonight, as we got out the tree to put up, Meagan completely freaked out. She was not ok with the change in our living room and had the biggest fit. Not even coaxing her with lights or pretty colors, or even Pop Pop (whom she will usually do anything for) could get her out of her fears. For some reason (which we will never know), Meagan did not like the tree. She did not like the lights. And she certainly didn't want any of it in her house. Welcome to the life of a family with a child who has sensory issues. So often we focus on her hydro complications or epilepsy set backs, other challenges slip through the cracks. But sensory issues with Meagan are very real. She doesn't handle transitions well, she doesn't like certain sensations or changes in her environment, and for a family of 7, this is very hard to deal with at times because we never know when she will react or become "unglued" from even a subtle change. And tonight was one of those moments.
As my husband continued to unpack the tree and put it up, Meagan was not having it! She was very upset and did not like it at all! It is times like these when although sad, you really do have to keep your sense of humor. If we relished in every moment that Meagan did not enjoy, we would never enjoy anything as a family. Sometimes, you just have a smile, or even giggle, and find the humor in the situation. And that we did. As sad as it was she didn't enjoy the tree going up, it was also funny to watch her come up with any excuse to get the tree out of the house. The video below was Meagan's initial reaction to the tree being put up....
We always know each day can bring the unexpected. But with a child like Meagan, we are reminded of that a bit more. Things can change in an instant and it's a constant battle to focus on the positive and what is versus what "could be." But we are getting better at that, and feel blessed to have all been home together as a family this holiday week. We sincerely wish each and every one a blessed Thanksgiving week, and hope this Christmas season is starting off as it should - with remembering thanks for even the trying moments, and then giving thanks to God for others that get us through those times with love ..... and even a little humor.
Happy Thanksgiving everyone!