Because of Meagan's weight dropping by a pound and her height stagnating over the last few months, Dr. B said we need to change her feeding plan so we don't see a stall in development at this point. Dr. B pulled out her growth charts since she has had her gtube and there is a nice sharp rise visit after visit, but this time, both her weight and height have dropped off the curve again. He said he wouldn't be as concerned if she had grown a lot in height and her weight was delayed, but being that they have both dropped he wants to try and add more feeds. He also wants us to limit her oral intake to a certain amount of minutes during the day to see if that helps preserve some more calories. We are supposed to do this new regiment for two months and come back for a re-check. If she has progressed we will stay this course of increased tube feeds and oral feeding for only "x" minutes at a time. If she hasn't progressed then we will move on to plan B which will be to take blood work to check growth horomones/pituitary function..etc.
We went down to first floor to the endoscopy clinic and signed in. Not long after Dr. B came down with a new button set. Of course Meagan saw the gloves, the hospital bed, and the white sheets and started freaking out. Luckily, Maura was with us so she jumped right on the bed with Meagan and helped calm her down. Dr. B was then able to do the button change with minimal fidgeting from Meagan ... a lot of screaming, but minimal fidgeting. Wasting no time, Maura jumped right up on the bed with her and made silly faces to cheer her up and Meagan was as good as new. Just like Corduroy the bear with a brand new shiny button :)
Overall a great appointment with Dr. B. So lucky to have such wonderful specialists on top of Meagan's care and making sure we are taking her in the right direction to do the best by her health and nutrition. We gathered up Meagan's tube supplies, a new prescription from Dr. B and made our way to the door. As we left Meagan screamed "BYEEEEE!!! SEEE YA!!!!!" Yep, I think she was ready to get home! Oh, and how could I forget! An added bonus to her day? On the way out Meagan got to see her BFF Claire who was there for an appointment as well! Of course it didn't dawn on me to take a picture, but Megs was sure to ask Claire for a Cinderella playdate very soon.