I just realized it has been a little while since I posted an update on Meagan. That's truly how busy we have been!! The household never stops - it's our way of life. But I'm happy to say that the latest busy times have been all for good reasons. We have had recovery times at home with Meagan, First Holy Communion of our oldest daughter, expected and surprise family visits, the school year winding down, our third daughter graduating preschool, and Irish dancing craziness with competitions and classes. Meagan is a trooper through it all - she just tags along to whatever we do and so far seems to enjoy it. I hope this means things are on the upswing for Meagan and for us as a family.
Ever since Meagan's Chiari surgery she has been a new little girl, as I posted before. But we have seen this again following her g-tube surgery. I know now her little body was definitely needing some more nutrition - within 5 days of getting her tube placed, Meagan gained a whole pound. A POUND. That is crazy. She had barely gained a few ounces in over a year. What was more amazing than the number on the scale is the immediate strength and "fulfillment" I have seen in Meagan since then. She just seems better all around. Happier. More content. Stronger. Chunkier :) It's amazing what a little nutrition can do. I'm so glad we decided to put the tube in - I have seen the amazing changes in her body and attitude from the added calories and nutrients.... a part of the puzzle I think we often overlook when worrying about our child's development.
Meagan got back to her therapies just a few weeks ago. We waited a bit because of all the surgeries and hospital stays - and because of her PEG tube. While doing well with it, it was extremely tender for a few weeks after, so it made most of her work at PT basically useless since all of it seemed to hurt her belly. I was in no rush to push her back into therapies because my first goal was for her to feel well and get better. Once I started seeing her personality coming back and all the good changes, I knew it was ok to get back to her PT and OT.
Her first few sessions back, she was of course miserable. She wasn't used to working for an hour anymore, and also was just tired from being out of her routine. We figured it was going to be a gradual road getting back to where she was pre-surgery and we were fine with that. We work on "Meagan time" not on any other schedule when it comes to her therapies and development, so we just sat back and let her take her own path. Well apparently, Meagan had other ideas about her "timeline." Literally in the last few days, she has started to try and sit up. Yep. It's been that sudden.
Typically, Brian and I try to have some down time when the kids are asleep and watch tv or something similar while finishing up some laundry or other chores. Meagan will lay in her nap nanny and start her bedtime routine and I will hook up her feed and get it going. She will generally play with her tube line or even chew on it (silly girl) and then tries to flip every which way in her nap nanny, but will finally drift off to sleep.