The rest of the night has really gone the same. Her oxygen went a bit down again, but, it stopped around 93 and has held there and then will go back up - so no desats into the 80s like before. I'm hoping that doesn't happen again. Otherwise she is doing really well on minimal pain meds, and seems so happy. She is the best I have seen her in over two weeks. Matter of fact, the nurses who saw her come back to a regular room even said "wow, she looks so much better!" I agree.
Because she looks so good now, Dr. R seems like he's going to wait on doing anything else surgically. It seems flushing out her shunt and shortening her catheter so it could be repositioned back in the correct spot to drain fluid has helped a ton - I think for now as long as she continues to improve, we are going to stick with that and save the external drain experiment for the next time we may have to deal with the symptoms of her small ventricles. That leaves us with an approach in our back pocket, per say, to pull out when we may need it if she becomes symptomatic again. Dr. R did swing by tonight late to just check on her head and incision - he said he would be by bright and early to talk. I'm hoping that means we will be talking about discharge plans.
That said I do have a lot of unanswered questions for him that have been mulling about my head today. I want to make sure I have all my answers clear and explanations thorough so I feel comfortable taking her home especially with her new symptoms that have showed up this week.
I was laying with Meagan tonight playing and talking with her. I told her "You are doing so awesome." She looked up at me and watched my mouth when I was talking to her just smiling and studying my movements. Then, this happened:
Yep. I'd say I agree Meagan!