Meagan

Our 5th daughter, Meagan, was diagnosed with severe Congenital Hydrocephalus at our 20 week ultrasound. Her story has propelled our family on a new journey. I hope to keep track of Meagan's story here to help other parents who may face a Hydrocephalus diagnosis for their child, and to celebrate Meagan's life.

Friday, September 6, 2024

The Long Pause

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 Wow.  I never thought it would be this much of a break between posts.   When I started this blog, I had the best of intentions to keep it g...
Wednesday, October 26, 2016

Which time?

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I was having a conversation with Reilly and realizing this was the week Meagan came home from the NICU, I s...
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Thursday, September 29, 2016

The 5 Year Lesson

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It's hard to believe it has been a whole 5 years since Meagan was born. But, as they say, time flies when you're having fun.  Fun ? ...
6 comments:
Sunday, September 11, 2016

It's Complicated....part 2

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I'm sure if you're like me, whenever something doesn't go as planned you always wonder about the "what ifs".... leavin...
4 comments:
Tuesday, September 6, 2016

It's Complicated ... part 1

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Ever since Meagan's "big event" in Virginia, she has been doing quite well.  She started back to school with her sisters, love...
2 comments:
Saturday, June 11, 2016

Dear Dr. K

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Dear Dr. K, Bear with me - it's been five years coming for me to write this letter.  Do you know how long that is? It's abo...
7 comments:
Friday, May 20, 2016

Problem Solved

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Before I get into details, I want to say that this blog post is being written from my living room - yep, my nice comfy home sweet home livi...
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Thursday, May 19, 2016

To The Moon And Back

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Meagan had a fairly uneventful night last night.  She crashed fairly early and slept well.  Her fever still hovered in the 103 range and she...
3 comments:
Tuesday, May 17, 2016

Numbers

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Meagan slept last night for a few good stretches.  She got a pre-op wipe down (just in case), and another dose of her heavy antibiotic.  Unf...
5 comments:
Monday, May 16, 2016

The Perfect Storm

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Since Meagan's surgery 11 days ago, she has been doing well. She was back to her normal "go get em" self, and even gave hersel...
2 comments:
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About Me

Molly and Brian
We have 8 beautiful daughters. Our 5th daughter was diagnosed with severe congenital Hydrocephalus at 20 weeks gestation. Although we've been through pregnancy before, this journey was quite different. Reading about other families dealing with Hydrocephalus helped us immensely, and we hope one day, this blog can help families who may have to deal with this condition in the future. We have had a gap with updates as life got busy, but we will try to pick up and post more often to talk about amazing Meagan and her life :)
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